Saturday, September 12, 2009

The Weekend, Sept. 12 2009

Just a quick update. We are still tweaking David's meds. He is still struggling from 5PM to 9PM. Please pray for us to find the right amount of medication and the right time span between each dose to keep David content and able to enjoy life. This morning I took him out for breakfast and we had a good time. He has been loosing weight (12-15 pounds) so we are supplementing with drinks like Ensure to keep his calories up. We had an Occupational Therapist and Physical Therapist visit our home to help us with finding some adaptive equipment to help in his care. We need a wheelchair, power lift once he can't stand, a hospital bed, and some other things. They were very helpful.

We had a surprise visit from our son, Christopher, and his girlfriend, Brittney, last night. They drove from Boston to surprise us and just encourage us. I wrote in my journal this morning that it was like a very bright light in the midst of the dark pathway we have been walking. They came to hang out with Daniel and to just help. We are blessed to have very special sons. Often I ask you to pray for David, but please pray for Daniel and Christopher as well. It is very difficult to see their brother struggling. We also have been guilty of pouring all our energy into David, leaving the other two to fend for themselves. This is not good!



Tuesday we leave for our cruise. Everyone is stepping up to the plate to help care for David and help with Daniel. God is so good.
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3 comments:

  1. Mary BockSeptember 12, 2009 at 2:38 PM

    We are praying for all of you. Praying that you will have a "Peace that surpasses all understanding"
    God Bless You..
    John and Mary

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  2. hedgieSeptember 12, 2009 at 8:32 PM

    ok be warned: here comes the silly
    today has been hard with David being quite resistant to just about anything from food to getting out of his chair/bed
    i have been asked
    by more than one person in my life
    how i manage to not take things personally
    when David gets persnikity
    well
    i think of this angry little green guy
    with tons of tenticles
    manipulating levers and cogs
    controlling David at his whim
    allowing David's legs to buckle
    or forcing him to yell out "NO!"
    that green guy is named Disease B
    and it isn't really in David's personality
    to do what Disease forces him to do
    and yet it happens just the same
    so i allow myself to get less frusturated
    and remember to treat the Disease and
    LOVE the David
    peace all
    Laura Audrey

    ReplyDelete
  3. UnknownSeptember 13, 2009 at 9:28 PM

    I missed being able to connect with you today Brenda as I was dealing with something else. Chip and I and the kids are praying for you all and hope you are going on your trip - if there is anything we can do to help here please let us know - I am always available - whether Dan needs an out or David and helpers need anything - I'm right around the corner! We love you! and are so inspired by your journey!
    Lisa and Chip Hodgkins

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