Tough Day

Today was a tough day for David. Thankfully he was content but he had a very tough time expressing himself, kept on telling us he couldn't stand up, when we did get him out of his wheelchair he was very unstable on his feet, didn't have much of an appetite (that is until I barbecued him a burger on the grill), was very repetitive, and very low energy. Yesterday it seemed as if David took two steps forward but today he went back three. Several things struck us today: 1) We need to be prepared for the day David will be full time in a wheelchair. Our current wheelchair is just a lightweight one. 2) We need to figure out how to transport David once we get this bigger chair. 3) We need to get some type of lift that will transfer David from his wheel chair to his bed or the toilet. Thankfully the State of New York will help us. We are also in the process of getting a hospital bed. It is getting harder to stoop over to change him or care for him.

The day ended with an amazing blessing. Jackie Wojcik, a friend from our church, who plays with the Syacuse Symphony, brought three other friends to play music for David and us. My mom joined us as they played Mozart, Rogers and Hamerstein, wedding music, and other requests. David love it. Every now and then he would yell out, "Too Loud!" I think he asked them, "Guess what?" 50 times in the hour and a half they played.

Thankfully David has been sleeping the last two nights. Please continue to pray this continues.



As we listened to the quartet Daniel enjoyed sushi with some of his friends. He said he loved it. Personally I like my meat barbecued. He can have it. Tomorrows a day off. Have lots to do to get ready for our cruise to Greece and Italy. Will write more about that later.