Hospice

Today we dipped our toes into the world of Hospice. It's purpose as stated in the information they left with us is as follows:

"Hospice of Central New York provides skilled, compassionate care to patients and their families coping with advanced illness and limited life expectancy. Care is focused on comfort rather than cure. We want to help people make the most of the time they have together, whether it is six months or six days."

We are hoping to officially register with them tomorrow. They are checking to make sure our involvement with them will not effect or cancel our current program and support staff. If you want more information on who and what Hospice is please click on the following links:

hospicecny.org

nationalhospicefoundation.org

dyingwell.org

As you can imagine there is a cacophony of emotions, feelings, and thoughts that parade through our minds and heart on a moment by moment basis. As David continues to not eat or drink much, as he sleeps more, and as he is unable to communicate his thoughts or feelings, we long for the day he is with Christ. On the other hand it is hard to imagine our home and family void of his presence. As I write this blog I hear David moaning and crying in his room with Brenda and our friend, Sue Craig. It makes me long for the day he will cry no more, as he is welcomed into heaven by his Savior. I can't imagine going through this journey without the sure and certain hope of eternity.

For the past two days David has been very sleepy and much more calm. We don't know if the medicines we are giving him are finally building up in his system or he is simply slowing down. He still has periods where he cries out and moans. He has also started to have what appear to be mini seizures where he seems startled, his legs begin to shake, and he is very wide eyed, almost as if he were frightened. Please pray this stops.

Many people ask how we are coping. Friends and family are providing food, some are cleaning, cards are coming in the mail, and we are learning to not expect to get as much done as we once did. We have a great staff who love David, Compassion Net is pouring out their support, and Brenda and I are holding strong. It has been tough on Christopher and Daniel. Christopher has the support and love of a wonderful young lady by the name of Brittney, Daniel is surrounded by good friends like Katie and Josh. We feel tired all the time. My work is both a relief and a challenge. Keep praying. Thanks for loving us!